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HELP US MAKE A REAL POSITIVE CHANGE FOR EB FAMILIES!

STEP 1 : SIGN THE PETITION

Every American should be able to participate in impartial health care coverage, regardless of their disease. The public and our legislators must understand the impact of this disease on EB patients and their families, and the inequity that subsists in today’s health care system.

Please send the link to this petition to anyone you know!
http://www.ebanusa.org/petition.htm

STEP 2 : WRITE TO YOUR LEGISLATOR!!

We need help in getting sponsors and support for this Bill! If you would like to help us, please write to your legislator.

LINKS to find your legislators and SAMPLE LETTERS you can use to write and here's a copy of the WOUND CARE BILL you may send along with it are available on the website at:
http://www.ebanusa.org/petition.htm

THANK YOU SO MUCH!

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DISCLAIMER

This website is intended to provide basic information about Epidermolysis Bullosa. EB Info World mostly includes Memorials, Photos of Children with EB, Personal Stories and EB Awareness gear and graphics. Descriptions of the various forms of EB were taken from various DebRA websites around the world and statistics were taken from the book by Dr. Fine. Everything is as accurate as possible. Various Bandaging Instructions and Tips are from parents and patients and are not intended to, nor do they, constitute medical or other advice. Readers are warned not to take any action with regard to medical treatment or otherwise, based on the information on this web site without first consulting a physician. EB Info World does not promote or recommend any treatment, therapy, institution or health care plan. The information contained in this site is intended to be for your general education and information only and not for use in pursuing any treatment or course of action. Ultimately, the course of action in treating a given patient must be individualized after a thorough discussion with the patient's physician(s). EB Info World may provide links to other individuals and organizations as a service to our visitors; EB Info World is not responsible for the information provided in other web sites we may link to or user comments by individuals participating in our List Serve, stories submitted to this site or this site's message forum.